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points | 04.25.18

Proceed With Caution

Kadija Ferryman, Elaine O. Nsoesie

After the Cambridge Analytica scandal, can internet data be used ethically for research? Data & Society Postdoctoral Scholar Kadija Ferryman and Elaine O. Nsoesie, PhD from the Institute for Health Metrics and Evaluation recommend “proceeding with caution” when it comes to internet data and precision medicine.

“Despite the public attention and backlash stemming from the Cambridge Analytica scandal — which began with an academic inquiry and resulted in at least 87 million Facebook profiles being disclosed — researchers argue that Facebook and other social media data can be used to advance knowledge, as long as these data are accessed and used in a responsible way. We argue that data from internet-based applications can be a relevant resource for precision medicine studies, provided that these data are accessed and used with care and caution.”

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